SOUTHEND'S GUIDE TO YOUR NEURODEVELOPMENTAL JOURNEY

Written by Jo Richardson; SSIF Steering Group Member and SEND parent, in co-production with the Southend Clinical Commissioning Group, Southend Borough Council, EPUT, The Lighthouse Centre, The SEN Trust Southend, SENDIASS, IPSEA, and A Better Start Southend.

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We know that finding out that your child is different and maybe/has been diagnosed with a neurodevelopmental condition can be scary and bewildering. But know that you are not alone.

 

 

What does Neurodevelopment mean?

Neurodevelopmental conditions are those that have affected the development of the nervous system in the brain. In simple terms, it just means that your child’s brain is different to other peoples. They think, feel, and see the world differently, but this does not mean that they are damaged, or anything is wrong with them. They are just different in many wonderful, and sometimes challenging ways.

 

 

Will my child or young person grow out of it?

All Neurodevelopmental conditions are life-long, so your child or young person will not grow out of it. However, the challenges that they have as children will change as they grow older. Their development levels will increase, and they will learn to adapt to deal with some challenges, and others will become less difficult in time. There may be difficulties that they deal with throughout their whole life, but most will change and develop as they get older.

 

Why should I read this Guide?

 

This Guide has been written to give you as much information, signposting, and support that we can fit onto the pages for this special journey to be less stressful and overwhelming for you, your family, and your child. You may experience a period of grieving that your child is not like most other children, that they and your family will experience challenges that you weren’t expecting, and that they may not have the exact life you were hoping for them.

First and foremost; DON’T BE AFRAID.

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We've made the information super easy for YOU to digest below.

This Guide has been divided into sections to make it more bitesize for you to refer to.

SECTION 1

I’m Worried About My Child’s Development
Common concerns

SECTION 2

Southend Local Offer

SECTION 3

Masking, Burnout, Meltdown, Shutdown
& Overwhelm

SECTION 4

Sensory Needs

SECTION 5

Mental Health &
Trauma

SECTION 6

Violent and Challenging/Controlling Behaviour

SECTION 7

Eating Issues

SECTION 8

Sleeping Issues

SECTION 9

Adolescence and
Puberty

SECTION 10

How to Tell if Your Child is Having Difficulty at School 

SECTION 11

Preparing For a Medical Assessment

SECTION 12

The Neu Approach Pathway

SECTION 13

Early Years Support

SECTION 14

SEND Support in Mainstream Schools

SECTION 15

Types of School Settings

SECTION 16

Transitions

SECTION 17

Home Educating EHE

SECTION 18

EHCPs

SECTION 19

EHC Hub

SECTION 20

Disagree With a EHC Assessment Decision?

SECTION 21

Therapies

SECTION 22

ND Conditions Breakdown

SECTION 23

Co-Morbid Conditions

SECTION 24

Gender Differences Between Autism & ADHD

SECTION 25

Family Fund

SECTION 26

Direct Payments

SECTION 27

Respite Care & Short Breaks

SECTION 28

Self Care For Parents

SECTION 29

Where to Go For Legal Advice

SECTION 30

Benefits That Can Be Applied For

SECTION 31

Blue Badge

SECTION 32

Southend SEND Services & Roles

SECTION 33

Training

SECTION 34

Parent Recommendations

SECTION 35

ND Myths

SECTION 36

Recommended Websites, Charities & Local Groups

SECTION 37

Recommended Facebook Groups & Pages

SECTION 38

Recommended Books

SECTION 39

Acronyms

SECTION 40

Glossary of Terms

SECTION 41

Bibliography